I have started writing about what happened to The Little Family during the last month but I cannot end the post. Feelings are too raw and I am overtired.
Elder Girl had to be dashed to hospital after a fit where she convulsed and badly hurt her head and scalp. She had a scan, an electro-encephalogram, various tests, was examined by various doctors and a neurologist, and diagnosed epileptic, which is often the case when DownS persons are ageing and heading towards the end of their lives.
I shall not write about life at home. I shall do this another time. Later. Life is difficult, bleak. I do not know how to cope. I do not have the means to cope and help is distilled drop after drop when I shriek for it.
I am tired of advice from people who do not know what I am going through and what The Girls are going through. Fortunately, I have a few kind friends on Facebook who have helped me go through last week ordeal. Others are only living in their own intellectual sphere without understand.
If you read this, would you please be kind enough to wave, say hello, show that you are here. No more. I feel alone and lonely. I try to be brave but I am NOT brave at all. I am frightened.